Emily Rapp Bücher

Mit neun Monaten wird bei Emily Rapps Sohn Ronan das Tay-Sachs-Syndrom festgestellt – eine degenerative Krankheit, die unweigerlich zum Tod führt. Als Emily erfährt, dass ihr Sohn seinen dritten Geburtstag wahrscheinlich nicht erleben wird, beginnt sie zu schreiben: über Ronan und die wertvolle Zeit, die sie zusammen verbringen, über ihre Trauer und ihre Verzweiflung. Dabei entstanden ist ein emotionales und kluges Buch, was von der Suche nach Trost in einer ausweglosen Situation berichtet. Eindringlich und zutiefst berührend erzählt Emily Rapp davon, was es bedeutet, ein Kind zu lieben und zu verlieren.

From the New York Times bestselling author of The Still Point of the Turning World - an incisive memoir about how she came to question and redefine the concept of resilience after the trauma of her first child's death.

A young woman who grew up with a disability that forced the amputation of her leg below the knee details her struggle to live with the problem, her role as a poster child for the March of Dimes, and dealing with self-image.

“A brilliant study of the wages of mortal love.” —The New York Times Book Review What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.Even before the book’s publication, Rapp set the Internet ablaze with her New York Times op-ed piece about parenting a terminally ill child. An immediate bestseller, The Still Point of the Turning World is Rapp’s memorial to her lost son and an inspiring and exquisitely moving reminder to love and live in the moment.